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  • Mon, 12:12: Meant to double down on PT exercises in preparation for next week's neurosurgery on right sciatic tumor but I sprained left ankle, hooray.
  • Mon, 14:33: My Aunty found a tape of my dad playing slack key, lost in a box of stuff for over thirty years.… https://t.co/Hhceh6d63D

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My tweets

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My tweets

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My tweets

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My tweets

  • Wed, 11:53: My condition interferes with my ability to participate in the life I so carefully created. It's difficult to not just completely give up.

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  • Thu, 10:48: I'm having such a hard time finding a schwannomatosis support group. I feel so alone. Rare diseases are so isolating.

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My tweets

  • Sat, 14:28: My Aunty found two tapes of my dad playing slack key and omg he was even more amazing than I remembered.

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